Welcome to the website of
Families of Spinal Muscular Atrophy Canada Society
FSMAC is the national charity dedicated to supporting Canadians affected by Spinal Muscular Atrophy and supporting research in our quest to find a cure or treatment for SMA.
If you or a family member are newly diagnosed, please click New Diagnosis for directions on how to access help.
Support, Research, Hope –
It is what we are here for.
Please email Susi Vander Wyk at Head Office
SMA - Never give up. Thank you for giving us hope. Please click to play. (HD version available for your event at https://youtu.be/q4Eu5ftcq-I)
Jan 2017 - Health Canada is reviewing Spinraza for use in Canada (FDA approved the medication in Dec 2016)
Cavallaro family - Defying the odds and climbing mountains to advance SMA Research
Look for Families of SMA Canada Society on FaceBook
for current events, research news and more
FSMA Canada is proud to celebrate over 10 years of partnership with Cure SMA
(formerly Families of SMA - USA)