Families of 
Spinal Muscular Atrophy
Canada
 


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P.O. Box 97   
Rivers, Manitoba R0K 1X0   
(800) 866-0016

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Families of Spinal Muscular Atrophy Canada
P.O. Box 97
Rivers, Manitoba R0K 1X0 
(800) 866-0016
http://www.CureSMA.ca

 

iGive.comDonate to FSMAC while doing your on-line shopping, in Canada or the States by using the on-line mall iGive.com. It's safe, secure, costs you nothing! Enter by clicking the image.
 
 
News and Updates
August is SMA Awareness Month

The 2010 Annual Spinal Muscular Atrophy Conference in Santa Clara, CA was a huge success! FSMA has launched a new support program for SMA patients and families this year where many of the conference workshops are available online. Conference presentations and videos are now available online at www.SMACommunity.org

Spring 2010 Newsletter

Upcoming Events: Georgia's Journey of Hope (Winnipeg) and 8th Annual Charity Golf Tournament (Stratmore, AB) and Angel Gala (Halton Hills, ON) - see Fundraising

Angel Gala Video - great fundraising tool

SMA Photo Album - please send a photo if you would like your child to be featured on the FSMAC home page

Standard of Care for SMA - Family Guide  and Journal of Child Neurology Standard of Care Consensus Statement
To be added to the FSMA Canada elist, please email bettylou@curesma.ca
If you or your child are newly diagnosed with SMA,  please email bettylou@curesma.ca for an information package on SMA. See also New Diagnosis Information (FSMA-US site).
International Spinal Muscular Atrophy Patient Registry - please register to be involved in any upcoming clinical trials

Katie's Lullaby CD
this song will melt your heart

 

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