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Shira Ella Fisher
Born June 16, 2005
SMA Type I
Victoria, BC |
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My story began when I was 4 mos. old and my Mom and Dad noticed I did
not move like my older brother Sam when he was the same age. I was taken
to 4 Doctors and 1 chiropractor that all misdiagnosed me and told my
mother she was just a worrisome mother and that maybe she had
postpartum. Doctors even went so far to suggest we might take a
parenting course because we were new parents. My dad took 3
developmental tests off the internet and found that I was not developing
like other kids. My mom took me to another Dr. with the outcome of these
tests my father did and the Dr. agreed that I had something seriously
wrong with me. I was rushed to the hospital where I was clinically
diagnosed with SMA Type 1 or Spinal Muscular Atrophy Type 1. 2 weeks
later my genetic blood test confirmed the clinical diagnosis. My Mom and
Dad have been advocating on my behalf with the medical system to make
sure I get the best care! I am now on the Non Invasive Protocol of Dr.
John Bach of the University Of Medicine and Dentistry Of New Jersey
www.doctorbach.com. I also have 2 good Dr.'s at the Victoria General
Hospital their names are Dr. Beck and Dr. Barclay they are Pediatric
Intensive Care Doctors. My daddy says that if it wasn't for
www.smasupport.com I might not have lived this long. Now I have many
friends I have met on SMA SUPPORT like my friend Lily, Skyler, Madison,
Ethan, Charlie, Charlotte and many, many more that also have SMA like
me. Many doctors said I would live maybe 1-4 years but that I was weak
and I might not live a year. Only Hashem knows how long I will live. I
am now 20 mos. old and I just ran a half marathon with my daddy. I love
ducks, walking in the woods with my famiy, talking with the doggies on
the trail, saying hello to horses and listening to the birdies. Reading
is one of my most favorite things to do. Barney and Elmo are my two most
favourite shows to watch
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Visit Shira's Web Site At:
www.asonginthisworld.com
View videos of Shira at:
www.youtube.com/Shira2 |
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November 2007 |
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