Archive for June, 2011
SMA Connections
Portal for connecting with other SMA families www.smacommunity.org
Videos created by and for FSMA (USA) www.youtube.com/user/FamiliesofSMA1
Facebook Pages
To have your FB page added to the list, email bettylou@curesma.ca (check with FaceBook to set up your link like this; make sure your privacy settings are not too tight or it won’t be accessible)
Sample Tribute page
Sample tribute/memorial page
To request permission to set up a memorial page and blog on this site, first register as a user and then email bettylou@curesma.ca for details. These pages can include photos and your story, and they can be configured so that comments from other registered users can be displayed if you want (comments must be approved by the blog creator – you – before they are visible.)
Sample SMA Family
Sample post – SMA Showcase
To request permission to set up a showcase page and blog on this site, first register as a user and then email bettylou@curesma.ca for details. These pages can include photos and your story, and they can be configured so that comments from other registered users can be displayed if you want (comments must be approved by the blog creator – you – before they are visible.)