Archive for July, 2011

Introductions and general comments

Please register and leave a comment if you wish, or introduce yourself.

Angel Gala for SMA

The Angel Gala for SMA  (November 12, 2011) now in its 6th year!

www.angelgala.com

This amazing event sells out every year, and has raised over $400,000 for FSMAC.

Click here to see the video created for the 2010 event by Theresa Van Fraassen. 

Books worth reading

SMA LIBRARY

This list includes: books written about or by people with SMA, books where a portion of the proceeds goes to SMA, and books for SMA Care and Management

  1.  Rise Above- How one man’s search for mobility helped the world get moving- Ralph W. Braun
  2. Not a Fire Exit- Christopher Finlan
  3. Death…..and the lessons i learned- Louise Smith
  4. Common Sense and Other Bits of Wisdom we Tend to Forget or Ignore- Louise Smith
  5. The Other Side of the Coin- Tracy Lynn Armstrong
  6. The Me in the Mirror- Connie Panzarino
  7. The Jeffrey Journey- Helen Baldwin
  8. Alan’s Notes on Love- Chrystal MacDonald
  9. Victorious Life- Elizabeth Jamsa Gearheart
  10. My Online Angel- Jonathan Greeson
  11. I Sit All Amazed- The Extraordinary Power of a Mother’s Love- Steve Mikita
  12. Management of Patients with Neuromuscular Diseases- Dr. John R. Bach
  13. Noninvasive Mechanical Ventilation- Dr. John R. Bach
  14. Guide to the Evolution and Management of Neuromuscular Disease- Dr. John R Bach
  15. Pulmonary Rehabilitation and the Obstructive and Paralytic Condition- Dr. John R. Bach
  16. You Will Dream New Dreams- Stanley d. Klein and Kim Schive
The above list was compiled by Theresa Van Fraassen in June 2011. Feel free to leave a comment or recommend a book below! (you must register/login to comment)
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