Families of SMA Canada exists for two reasons:
- To fund the best possible Canadian research in search of a
treatment or cure for the Spinal Muscular Atrophy diseases.
- To support families and individuals affected by Spinal Muscular
Atrophy.
Families of SMA Canada was founded as a Charitable Organization in
Summer 2000. Operating as a separate organization from Families of SMA
in the States, we work very closely with them, and have access to all their
resources. We are a volunteer-driven organization. It is our
goal to
direct at least 95% of our income to funding research. We represent
families in every province.
There have been a number of recent breakthroughs in SMA research over
the last few years. Fortunately, Canadian researchers have been a big
part of those breakthroughs and continue to excel in this field. All of
our Canadian researchers are active participants of the North American
Spinal Muscular Atrophy Research Group (initiated by FSMA-US). We will
continue to support them in our quest for a cure!
Families of SMA Canada seeks to link some very special families and
individuals, helping us realize that we are not alone. We are constantly
finding new ways to offer support and hope. We offer:
- The quarterly newsletter of FSMA-US, "Direction"
- Our own Canadian newsletter
- Our web site
- FSMA-US annual conference, which allows families and professionals
to get together for 3 days to learn the latest information about all
aspects of SMA.
At Families of SMA Canada, we all need each other. If you can help,
please offer - if you need help, please ask. With your help and support,
we will reach our goal - finding a cure for SMA!
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