Header image  


Let's get together and spread the awareness!  We look forward to the day when Spinal Muscular Atrophy is well known.  With awareness comes funding and ultimately a treatment and/or a cure!!

As an organization, Families of SMA Canada takes pride in bringing together our SMA community in ways that bring mutual support and understanding along with the hope for a cure.  We feel that together as a unified force, we fight this disease on many fronts. Annually, we do something special in unison, from the east coast clear across to the west coast.  A powerful moment that we feel deep down in our hearts as we stand together. 

This year,  August 16, will be Canada's National SMA Awareness Day.  And this year, we will have a minute of silence as we remember our special SMA angels that were taken from us far too early and we will honor our SMA fighters that we are fighting for in our quest to find a cure.

Join us at the times posted below.  Gather your friends, family, neighbors and community, light tea lights in a group and join us as we remember and honor our SMA loved ones. Feel the strength and power of our Canadian SMA Family across the miiles as we become one.

  • Newfoundland 7:30 pm
  • Atlantic Time Zone 7:00 pm
  • Eastern Time Zone 6:00 pm
  • Central Time Zone 5:00 pm
  • Mountain Time Zone 4:00 pm
  • Pacific Time Zone 3:00 pm

Please take pictures so we can share them with each other! (email to Susi at fsmacan@telus.net)

Together we WILL conquer!!

Sincerely, Susi Vander Wyk
Executive Director
Families of SMA Canada


In August, we promote awareness of SMA.

There are many creative ways to do this:

  • posters in hospitals
  • public service announcements
  • hold fundraisers to fund research and support
  • hold a national synchronized event to represent our mutual support and dedication to research
  • and many more

For more information about these and other awaress-raising events, please call or email Susi VanderWyk at the office.