LINKS related to SMA
Families of SMA (US)
SMA Community Connections www.smacommunity.org - a portal for connecting with other SMA families
Canadian Neuromuscular Disease Registry
Stella: an SMA story
Cashel Gardner: "I am happy to be me"
POWER to be children: measuring participation in everyday life for those benefiting from power mobility use.
If you would like to have your FaceBook page listed, please email email@example.com.(Canadian families only please)
Other Related Resources